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Our Life is…

Hilarious, Joyful, Medically Complex. Food Allergies, Mito, CHD. Toddler, Tween, Teen. A new adventure every day.

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josie

Life is…full.

Long time, no write! The past year or so has been so incredibly full and I have so many things to say and process and yet, the time and energy to devote to such things has been¬†impossibly hard to come... Continue Reading →

Christmas Letter 2015

Dear friends and family, Once again, we decided to go the virtual route with our Christmas cards and letter. 2015 did not leave much spare room for such things (in fact, if I finish writing this before Christmas, it will... Continue Reading →

Josie’s big surgery!

The quick version is this, she went from this... to this... in 5 days! The long version is, of course, much longer. It was the hardest experience of our lives thus far and we really, really hope it remains the... Continue Reading →

Coming (Too) Soon: Open Heart Surgery

Josie is 6 months old and a total JOY! It has been a weird, wild, and exceedingly blessed six months with our sweet, tiny girl. Unfortunately, that means it is time for her big open heart surgery to repair her... Continue Reading →

New Normals

Life has changed so much since Josie's diagnoses (VSD, congestive heart failure, failure to thrive, and milk protein allergy...a diagnosis for every month of life so far)! It is definitely more complicated logistically (more on that later), but actually getting... Continue Reading →

Home!

We were released from the hospital on Friday and it is SO wonderful to be home. Josie is so different now, it is almost like one baby went into the hospital and another came out. Before she was hospitalized, she was... Continue Reading →

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