So here we are after MONTHS of fighting for our literal lives and beating back multiple assaults on our access to healthcare, and the President has sidestepped the appropriate legislative channels and signed an executive order that will hugely destabilize our healthcare markets
I am a mito mom and a heart mom. In many ways, being a mito mom prepared me well for being a heart mom; I knew how to speak medicalese, interact with doctors, survive a hospital stay, navigate scheduling, track ins and outs, stay on top of a med schedule, how to live one day at a time so fear does not consume you...so many things! The thing that surprised me was how comparatively easy (which is still NOT easy) it was, not because I was so prepared, but because the world UNDERSTANDS heart defects and they DO NOT understand mitochondrial diseases.
I posted this yesterday and it struck me that "normal" people don't know what half of this stuff means! So I've provided some explanations below. I hope it helps you understand K a little bit better. Lesions: K had lesions... Continue Reading →
If you've ever read the Gospels, you probably have noticed that Jesus was BIG on helping those who have needs (physical, financial, spiritual, ect.). If you've read the Bible in general, you'd know that there are clear instructions to put... Continue Reading →