Our Life is…

Hilarious, Joyful, Medically Complex. Food Allergies, Mito, CHD. Toddler, Tween, Teen. A new adventure every day.

Thanks-A-Palooza 2017!

Last year we started a new Thanksgiving tradition because of Jo's food allergies. It's not really safe at this point for her to go to other people's houses for meals that include things she is allergic too, so in lieu... Continue Reading →


Blessed Are The Misfits

I recently had the opportunity to read Brant Hansen's new book, Blessed Are the Misfits, as part of the book launch team. I was SUPER stoked about it, because I used to listen to Brant when he was on Air1... Continue Reading →

Deep Thoughts on Daniel Tiger

Josie is super into Daniel Tiger. I like it, too. Catchy songs, good lessons. But sometimes I wonder...what exactly is going on in The Neighborhood?? Is The Neighborhood a cult or an experimental child development community? Is that why are... Continue Reading →


Four years ago, we changed the way we do Christmas gifts for kids. Instead of buying willy-nilly (within our budgetary limits), we shifted to a want/need/wear/read structure. This means our kids get 4 gifts from us, and each of them... Continue Reading →

Tell Congress to Reauthorize CHIP.

It has been 45 days since Congress let the CHIP program expire. 45 days in which Congress has failed to do their job, yet again. 45 days of fear for families that rely on this program. A few CHIP facts:... Continue Reading →

What Is Dysautonomia?

To understand dysautonomia, first you have to understand what the "autonomic nervous system" is. The autonomic nervous system is the part of the nervous system that controls the internal organs (blood vessels, stomach, intestines, liver, kidneys, bladder, genitals, lungs, pupils,... Continue Reading →

I believe…

I believe that Jesus Christ is my Savior. It is a trustworthy saying that deserves full acceptance: Christ Jesus came into the world to save sinners - of whom I am the worst. 1 Timothy 1:15 I believe that He... Continue Reading →

5 Things to Know About High Needs Kids

I've been meaning to write about this and since Jo had an epic meltdown tonight at the end of an extended family dinner, it seemed appropriate! Josie is what they call a high needs kid. She was born a high... Continue Reading →

How To Meet The Love of Your Life in 16 Easy Steps

Step One: Be 13 years old. Set up an account on 104KRBE's Cyberlove message board. Probably lie about your age, at least slightly. Step Two: Go to the "Friend Seeking Friend" section. Step Three: Initiate messaging with spacemanZERO. This is... Continue Reading →

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