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Our Life is…

Hilarious, Joyful, Medically Complex. Food Allergies, Mito, CHD. Toddler, Tween, Teen. A new adventure every day.

A Prayer for Tired Mamas

Today we fed,cleaned,advocated,soothed,instructed,tried,listened,protected,juggled,sighed,labored,joked,chauffeured,nudged,read,dressed,birthed,chased,pleaded,prayed,launched.Today we carriedbabies in our arms,toddlers on our hips,preschoolers as they flailed about in protest,children that are not our own,fierce hope for our kid's success or safety or survival,worry that things will never change or that everything could,sorrow... Continue Reading →

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When I remember their baptism

A year ago today, we joined our beloved church and my babies were baptized. I wanted so much to write about it then, but I was absolutely wordless which is a frustrating thing for someone who tends to feel out... Continue Reading →

A Prayer for Holy Saturday

Jesus, You died and still we wait. I feel myself lurching towards Sunday. There is less than an hour before today becomes tomorrow and my heart strains toward it knowing that tomorrow is where resurrection lies, but it is cheating.... Continue Reading →

A Prayer for Four

May this fresh year hold belly laughs and giggles, wide-eyed wonder, shivers of boundless joy, courage and curiousity, trust in yourself, tenderness with others, strength to feel big emotions and breathe through them, bravery to ask for what you need,... Continue Reading →

A Prayer of Thanks in Spring

Thank you God for sunshine and temperate weather, and the little songs our hearts burst into upon its arrival. Thank you for pigtails, galoshes, 3 year olds who spontaneously burst into made up songs, energetic pups who run furious laps... Continue Reading →

A Prayer of Thanks for Church

God of Community, Thank you for church. Thank you for a place to gather in our brokenness and dustiness and fumbling, in our joys and sorrows and wanderings, in our failings and weaknesses and fears, and especially in our aching... Continue Reading →

I am dust.

Today is Ash Wednesday, the first day of Lent. I did not grow up with the liturgical calendar, but oh, how have I grown to love it. There is something beautiful in being carried along by its current and in... Continue Reading →

Rare Disease Day

Today is Rare Disease Day, the day the zebras show their stripes and remind everyone that hoofbeats don't always belong to horses.┬áIt is the last in a month full of awareness days for us (Feeding Tube Awareness Week, CHD Awareness... Continue Reading →

Christmas Letter 2018

Dear friends and family, It is Christmas Eve and I am writing our annual Christmas letter, in my pajamas once again, because I am what they kindly refer to as a "sprinter" (which is procrastination viewed through a rosier lens).... Continue Reading →

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