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Our Life is…

Hilarious, Joyful, Medically Complex. Food Allergies, Mito, CHD. Toddler, Tween, Teen. A new adventure every day.

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josie

A Prayer for Four

May this fresh year hold belly laughs and giggles, wide-eyed wonder, shivers of boundless joy, courage and curiousity, trust in yourself, tenderness with others, strength to feel big emotions and breathe through them, bravery to ask for what you need,... Continue Reading →

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Goodbye Bottle, with love.

So it has finally happened, Josephine is no longer drinking out of bottles. Yes, she's two and a half. And yes, most babies are weaned from them around their first birthday. Josephine has had her own unique journey, though, with... Continue Reading →

Some days surprise you…

This morning sucked. We had Josie's cardiology appointment which always causes someĀ  stress even though I know she *should* continue to be fine. On top of that, my map app miscalculated our leave time when I checked it last night... Continue Reading →

Gift Ideas for (High-Needs) Toddlers

We have a high-needs toddler, as I mentioned before. High-needs kids don't really play independently, like at all. It can be challenging to shop for a little Cling-on (because the thing that mainly want is YOU), so I'm sharing a... Continue Reading →

Thanks-A-Palooza 2017!

Last year we started a new Thanksgiving tradition because of Jo's food allergies. It's not really safe at this point for her to go to other people's houses for meals that include things she is allergic too, so in lieu... Continue Reading →

5 Things to Know About High Needs Kids

I've been meaning to write about this and since Jo had an epic meltdown tonight at the end of an extended family dinner, it seemed appropriate! Josie is what they call a high needs kid. She was born a high... Continue Reading →

Holiday Memories or Safety? Choose ONE.

This dilemma is often real life for food allergy parents. Why does every single holiday event center around food? Even events held in traditionally food-free, safe spaces for individuals with food allergies become dangerous during the holidays. Here are a... Continue Reading →

Hamilton: A Toddler Musical

Josephine is a "Hammy" super-fan. She is two. Every time we get in the car she says, "I need Hammy!" She isn't a huge talker, but she knows so many parts of the cast recording. The first part she learned... Continue Reading →

Testify

Yesterday I went to the Capitol in Austin to testify in front of the Senate Finance Committee about proposed cuts to CHIP and Medicaid. I left home about 8am and got home at 10:30pm, and much of the time in... Continue Reading →

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