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Our Life is…

Hilarious, Joyful, Medically Complex. Food Allergies, Mito, CHD. Toddler, Tween, Teen. A new adventure every day.

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vsd repair

Heartiversary

One year ago today, we said goodbye to our sweet girl and sent her to the OR with strangers who would open her chest and heart, and repair a very problematic hole between her ventricles. One year ago today, we spent... Continue Reading →

Josie’s big surgery!

The quick version is this, she went from this... to this... in 5 days! The long version is, of course, much longer. It was the hardest experience of our lives thus far and we really, really hope it remains the... Continue Reading →

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