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Our Life is…

Hilarious, Joyful, Medically Complex. Food Allergies, Mito, CHD. Toddler, Tween, Teen. A new adventure every day.

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vsd repair

Heartiversary

One year ago today,¬†we said goodbye to our sweet girl and sent her to the OR with strangers who would open her chest and heart, and repair a very problematic hole between her ventricles. One year ago today, we spent... Continue Reading →

Josie’s big surgery!

The quick version is this, she went from this... to this... in 5 days! The long version is, of course, much longer. It was the hardest experience of our lives thus far and we really, really hope it remains the... Continue Reading →

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