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Hilarious, Joyful, Medically Complex. Food Allergies, Mito, CHD. Toddler, Tween, Teen. A new adventure every day.

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tube feeding

The Story of K’s Tube

This week is Feeding Tube Awareness Week and the first suggested prompt was "Why does my child have a feeding tube?" and while I think everyone knows to some extent why K has a feeding tube at this point, it wasn't... Continue Reading →

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Top 5!

In no particular order... 1. Last week, for the first time since starting occupational therapy at 17 months, K's OT mentioned her possibly graduating in the next few months. Whoa! Her sweet OT was a little teary-eyed at the prospect,... Continue Reading →

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Back in June, K's motility specialist wrote a prescription for a medication called Periactin. It is a first generation antihistamine (like Benadryl), but it is pretty much worthless in that capacity. Instead it functions really well in a few different... Continue Reading →

Meet K’s NEW Tube

K recently had her G-tube switched out for a GJ-tube. This was her old tube: It was a Bard G-button and it was very simple, just one little flap with one little port. It worked great for her for over... Continue Reading →

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