Today is Rare Disease Day, the day the zebras show their stripes and remind everyone that hoofbeats don't always belong to horses. It is the last in a month full of awareness days for us (Feeding Tube Awareness Week, CHD Awareness... Continue Reading →
To understand dysautonomia, first you have to understand what the "autonomic nervous system" is. The autonomic nervous system is the part of the nervous system that controls the internal organs (blood vessels, stomach, intestines, liver, kidneys, bladder, genitals, lungs, pupils,... Continue Reading →
This is my daughter. She is a bright, hilarious kid who loves musical theatre, drawing, writing fan-fiction, online gaming, spending time with her friends, and texting/FaceTiming when she can't be with them. This is also my daughter. She needs a... Continue Reading →
Our Life is... 