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Our Life is…

Hilarious, Joyful, Medically Complex. Food Allergies, Mito, CHD. Toddler, Tween, Teen. A new adventure every day.

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congestive heart failure

Big Days

Some days you wake up and everything is the same and by the time you go to sleep nothing is the same. Those are the Big Days. A year ago today was one of those Big Days for us, the┬ábiggest... Continue Reading →

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Coming (Too) Soon: Open Heart Surgery

Josie is 6 months old and a total JOY! It has been a weird, wild, and exceedingly blessed six months with our sweet, tiny girl. Unfortunately, that means it is time for her big open heart surgery to repair her... Continue Reading →

New Normals

Life has changed so much since Josie's diagnoses (VSD, congestive heart failure, failure to thrive, and milk protein allergy...a diagnosis for every month of life so far)! It is definitely more complicated logistically (more on that later), but actually getting... Continue Reading →

Home!

We were released from the hospital on Friday and it is SO wonderful to be home. Josie is so different now, it is almost like one baby went into the hospital and another came out. Before she was hospitalized, she was... Continue Reading →

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