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Our Life is…

Hilarious, Joyful, Medically Complex. Food Allergies, Mito, CHD. Toddler, Tween, Teen. A new adventure every day.

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lifewithk

Guess what?

Yes! K is going to be a big sister at the end of March (or more likely, the beginning of April)! See? I realized that although we are halfway to baby, I hadn't mentioned it here at all. Oops! We... Continue Reading →

So, how is homeschool going?

We are 8.5 weeks into our homeschooling adventure and it is going fantastically! Even though Josh and I both felt like this was the right thing for K, it was still a scary thing to pull her out of her... Continue Reading →

A New Adventure

Yesterday was the last day of school for the kids! While it was a JOY to delete my 5:30am alarm last night, yesterday was a little tougher to get through than most Last Days of School have been because it was... Continue Reading →

Last Night of Eight!

The Story of K’s Tube

This week is Feeding Tube Awareness Week and the first suggested prompt was "Why does my child have a feeding tube?" and while I think everyone knows to some extent why K has a feeding tube at this point, it wasn't... Continue Reading →

Ladybug Celebration Day!

Carole Amber is the author of the beautiful book, The Gift of the Ladybug, which she wrote to share her son TJ's story and communicate the experience of discovering that you are parenting a different kind of child than you... Continue Reading →

Happy New Year!

Hey there! I have been a little lackadaisical in the blogging department as of late, haven't done it all year, in fact. 😉 Sorry about that! We are all doing pretty well at the moment, especially K (knock on wood).... Continue Reading →

Top 5!

In no particular order... 1. Last week, for the first time since starting occupational therapy at 17 months, K's OT mentioned her possibly graduating in the next few months. Whoa! Her sweet OT was a little teary-eyed at the prospect,... Continue Reading →

More about Mito

Mitochondrial Disease Awareness week is over, but at our house it is never really over and there are a few more things I wanted to share here that I posted about on Facebook last week. Mitochondrial Disease is an INVISIBLE... Continue Reading →

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