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Our Life is…

Hilarious, Joyful, Medically Complex. Food Allergies, Mito, CHD. Toddler, Tween, Teen. A new adventure every day.

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lifewithk

Food We CAN Eat!

I'm putting this together for people who might want to bring us food either while we are in the hospital with Josie or after we get home, because with our dietary restrictions it can be a tricky thing to do! I wish... Continue Reading →

New Normals

Life has changed so much since Josie's diagnoses (VSD, congestive heart failure, failure to thrive, and milk protein allergy...a diagnosis for every month of life so far)! It is definitely more complicated logistically (more on that later), but actually getting... Continue Reading →

Josie’s Heart

Last Friday, Josie had her first visit with the pediatrician. Her first couple of check-ups were done by our midwives, first at our house and then at the birth center, so we didn't need to the see the pediatrician until it... Continue Reading →

Year One

K and I finished her first year of homeschooling a few weeks ago and I think it was a success! Although her health was pretty good for the most part, she still had enough issues that it made me very... Continue Reading →

Josie’s Birth Story

Josie is two weeks old now, so I figure it is about time to post her birth story. It has been on my to do list, but getting sufficient time where I am not holding or nursing this sweet little... Continue Reading →

Medical Organization for K

Managing life with a medical kid is a constant work in progress. Things are always changing and shifting and what works right now, might not always. In spite of that, here are a couple of things that we have found... Continue Reading →

Organization and such…

One thing that life with K has taught me is that I have to be organized...to some extent. My default nature is to procrastinate until the last minute and then make a mad dash to the finish line, but you... Continue Reading →

Christmas and New Year’s!

We had a great Christmas this year...well, we had several Christmases, actually. They were all good! Family, friends, presents, food, church, an awesome trip to the North Pole. Good stuff. For our main family Christmas, we handled things a little... Continue Reading →

Christmas Letter 2014

Dear family and friends, Since last year I made/ordered cards and wrote/printed our Christmas letter and neither ever made it into the mail, I decided to simplify life this year and handle this virtually instead so maybe it would actually... Continue Reading →

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