Carole Amber is the author of the beautiful book, The Gift of the Ladybug, which she wrote to share her son TJ's story and communicate the experience of discovering that you are parenting a different kind of child than you... Continue Reading →
Hey there! I have been a little lackadaisical in the blogging department as of late, haven't done it all year, in fact. 😉 Sorry about that! We are all doing pretty well at the moment, especially K (knock on wood).... Continue Reading →
In no particular order... 1. Last week, for the first time since starting occupational therapy at 17 months, K's OT mentioned her possibly graduating in the next few months. Whoa! Her sweet OT was a little teary-eyed at the prospect,... Continue Reading →
Mitochondrial Disease Awareness week is over, but at our house it is never really over and there are a few more things I wanted to share here that I posted about on Facebook last week. Mitochondrial Disease is an INVISIBLE... Continue Reading →
When K was born, she was seemingly healthy. With the exception of a couple of ER visits during her infancy, frequent illnesses, and slowness to reach milestones...we thought things were okay for most of her first year. By her first... Continue Reading →
I'm a little behind here! Waaay back in June, before the perfect storm and all that came with it, K saw her motility specialist for the first time. Her ordered a sitz marker study, which we put off until the... Continue Reading →
I write one of these letters for K's new teacher every year so they know what they are getting into and then I pray they don't run for the hills! 😉 I try to be as open and honest as... Continue Reading →
Back in June, K's motility specialist wrote a prescription for a medication called Periactin. It is a first generation antihistamine (like Benadryl), but it is pretty much worthless in that capacity. Instead it functions really well in a few different... Continue Reading →
As I mentioned in a previous post, May was full of medical appointments for K. In reverse order she was seen by GI, pulmonology, the dentist, her mito specialist, and her pediatrician...it won't make for a super interesting post, but... Continue Reading →
Our Life is... 