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Our Life is…

Hilarious, Joyful, Medically Complex. Food Allergies, Mito, CHD. Toddler, Tween, Teen. A new adventure every day.

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Kyla

Medical Organization for K

Managing life with a medical kid is a constant work in progress. Things are always changing and shifting and what works right now, might not always. In spite of that, here are a couple of things that we have found... Continue Reading →

Organization and such…

One thing that life with K has taught me is that I have to be organized...to some extent. My default nature is to procrastinate until the last minute and then make a mad dash to the finish line, but you... Continue Reading →

Christmas and New Year’s!

We had a great Christmas this year...well, we had several Christmases, actually. They were all good! Family, friends, presents, food, church, an awesome trip to the North Pole. Good stuff. For our main family Christmas, we handled things a little... Continue Reading →

Christmas Letter 2014

Dear family and friends, Since last year I made/ordered cards and wrote/printed our Christmas letter and neither ever made it into the mail, I decided to simplify life this year and handle this virtually instead so maybe it would actually... Continue Reading →

Guess what?

Yes! K is going to be a big sister at the end of March (or more likely, the beginning of April)! See? I realized that although we are halfway to baby, I hadn't mentioned it here at all. Oops! We... Continue Reading →

So, how is homeschool going?

We are 8.5 weeks into our homeschooling adventure and it is going fantastically! Even though Josh and I both felt like this was the right thing for K, it was still a scary thing to pull her out of her... Continue Reading →

A New Adventure

Yesterday was the last day of school for the kids! While it was a JOY to delete my 5:30am alarm last night, yesterday was a little tougher to get through than most Last Days of School have been because it was... Continue Reading →

Last Night of Eight!

The Story of K’s Tube

This week is Feeding Tube Awareness Week and the first suggested prompt was "Why does my child have a feeding tube?" and while I think everyone knows to some extent why K has a feeding tube at this point, it wasn't... Continue Reading →

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