Our Life is…

Hilarious, Joyful, Medically Complex. Food Allergies, Mito, CHD. Toddler, Tween, Teen. A new adventure every day.




K has been struggling quite a bit lately and we are feeling a bit helpless. She reports symptoms to me so often and all I can really say is, "Okay, I'll make a note of it." and send her to... Continue Reading →

Last Night of Eight!

Ladybug Celebration Day!

Carole Amber is the author of the beautiful book, The Gift of the Ladybug, which she wrote to share her son TJ's story and communicate the experience of discovering that you are parenting a different kind of child than you... Continue Reading →

Mitochondrial Disease Awareness A friend's daughter made this great video about her little brother who has mito. It does a great job explaining what mito is and how it affects these kids and their families. K has experienced many of the same... Continue Reading →

Happy Mother’s Day

From signing to scripting to reading poetry, one of my favorite parts of Mother's Day is rewatching this little record of how far K has come over the years (which definitely have "flown wite by"!)

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