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Our Life is…

Hilarious, Joyful, Medically Complex. Food Allergies, Mito, CHD. Toddler, Tween, Teen. A new adventure every day.

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rare disease day

Rare Disease Day

Today is Rare Disease Day, the day the zebras show their stripes and remind everyone that hoofbeats don't always belong to horses.┬áIt is the last in a month full of awareness days for us (Feeding Tube Awareness Week, CHD Awareness... Continue Reading →

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Rare Disease Day!

Today was Global Rare Disease Day and the teachers and Staff at K's school participated in Global Genes Project's Wear that you Care Day Fundraiser. They donated a total of $210 to MitoAction in honor of our sweet girl (and... Continue Reading →

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