Today is Rare Disease Day, the day the zebras show their stripes and remind everyone that hoofbeats don't always belong to horses. It is the last in a month full of awareness days for us (Feeding Tube Awareness Week, CHD Awareness... Continue Reading →
Today was Global Rare Disease Day and the teachers and Staff at K's school participated in Global Genes Project's Wear that you Care Day Fundraiser. They donated a total of $210 to MitoAction in honor of our sweet girl (and... Continue Reading →
Our Life is... 