Our Life is…

Hilarious, Joyful, Medically Complex. Food Allergies, Mito, CHD. Toddler, Tween, Teen. A new adventure every day.



Medical May

As I mentioned in a previous post, May was full of medical appointments for K. In reverse order she was seen by GI, pulmonology, the dentist, her mito specialist, and her won't make for a super interesting post, but... Continue Reading →

Pulmonology Appointment

K had a pulmonology appointment recently and everything went very well! It was our first appointment since starting K on overnight oxygen for her central apnea AND since discovering that she needs daytime oxygen most of the time when the... Continue Reading →

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