Our Life is…

Hilarious, Joyful, Medically Complex. Food Allergies, Mito, CHD. Toddler, Tween, Teen. A new adventure every day.



Tell Congress to Reauthorize CHIP.

It has been 45 days since Congress let the CHIP program expire. 45 days in which Congress has failed to do their job, yet again. 45 days of fear for families that rely on this program. A few CHIP facts:... Continue Reading →

About That Healthcare Executive Order…

So here we are after MONTHS of fighting for our literal lives and beating back multiple assaults on our access to healthcare, and the President has sidestepped the appropriate legislative channels and signed an executive order that will hugely destabilize our healthcare markets

Let’s Talk About the AHCA [and the BCRA].

  Hi. My name is Kyla. I live in Texas. I am married to a great guy who works in IT and we have three kids,¬†two of whom have medical needs well beyond the typical¬†ear infections and viruses of childhood.... Continue Reading →


Yesterday I went to the Capitol in Austin to testify in front of the Senate Finance Committee about proposed cuts to CHIP and Medicaid. I left home about 8am and got home at 10:30pm, and much of the time in... Continue Reading →

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