On the way to school on Tuesday, my son said, "Hey Mom? What if K was normal?" I said, "Normal? What do you mean?" and he said, "You know--NORMAL--like she didn't require so much technology hooked to her..." My immediate... Continue Reading →
(this is how a typical HEALTHY school day runs for our girl) 4:30am Her overnight fluids end. Time for Nexium (for reflux) and CoQ10 (for mito). 6:15am She gets Augmentin (for gastric motility) and 8 ounces of Elecare Jr with... Continue Reading →
It has been a rough few days! We are currently fighting against a return trip (we were already in the ER on Saturday) to the hospital because K still isn't doing well. It all started Thursday afternoon when K made... Continue Reading →
Our Life is... 