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Our Life is…

Hilarious, Joyful, Medically Complex. Food Allergies, Mito, CHD. Toddler, Tween, Teen. A new adventure every day.

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Advocacy

Their lives are just as precious.

Last night, I was awakened by a small voice. It said, "Mama." I waited a moment. It said, "Mama! Hold me." So I said, "Come up here with me." The owner of the little voice scrambled up into my bed... Continue Reading →

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Please Stay Home If You Are Sick.

It is once again that magical time of year, COLD AND FLU SEASON. Stomach bugs, strep, flu, hand foot and mouth, and garden-variety upper respiratory viruses are running rampant, and sadly most people are making their job a lot easier... Continue Reading →

Tell Congress to Reauthorize CHIP.

It has been 45 days since Congress let the CHIP program expire. 45 days in which Congress has failed to do their job, yet again. 45 days of fear for families that rely on this program. A few CHIP facts:... Continue Reading →

One Person’s Annoying Is Another Person’s Inspiring and Heroic.

A year ago today, I bought a bottle of moscato d'asti to open in celebration of the election results. Instead, it was opened in sadness when it was clear that there would be no celebration, at least not in my... Continue Reading →

Holiday Memories or Safety? Choose ONE.

This dilemma is often real life for food allergy parents. Why does every single holiday event center around food? Even events held in traditionally food-free, safe spaces for individuals with food allergies become dangerous during the holidays. Here are a... Continue Reading →

About That Healthcare Executive Order…

So here we are after MONTHS of fighting for our literal lives and beating back multiple assaults on our access to healthcare, and the President has sidestepped the appropriate legislative channels and signed an executive order that will hugely destabilize our healthcare markets

I know Jesus said to help the needy, but…

If you've ever read the Gospels, you probably have noticed that Jesus was BIG on helping those who have needs (physical, financial, spiritual, ect.). If you've read the Bible in general, you'd know that there are clear instructions to put... Continue Reading →

Let’s Talk About the AHCA [and the BCRA].

  Hi. My name is Kyla. I live in Texas. I am married to a great guy who works in IT and we have three kids,¬†two of whom have medical needs well beyond the typical¬†ear infections and viruses of childhood.... Continue Reading →

Who Lives, Who Dies, Who Tells Your Story

Today is International Women's Day and it has prompted me to put down in writing something that has been circling in my brain so often lately. I am not a person who cries weekly at This Is Us  (it has only gotten... Continue Reading →

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